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Author Topic:   new child with epilepsy
banking_ben
Member
posted 01-24-2003 02:38 PM     Click Here to See the Profile for banking_ben     Edit/Delete Message
My name is Ben and I have recently gotten engaged. My fiance has a 13 old son with epilepsy. I have known about this for some time but I haven't spent that much time with Mike until recently. Just this weekend he had a seizure while I was around (the first bad one I had witnessed). It has made me realy aware of much I don't know about this disorder. Mike is a realy sweet kid and I love my fiance. I guess I was just wondering if you all could give me advice about how to care for a child in this situation...(remember, I am learing how to care for any child (this is my first marrige and child)and now a special needs child). I was also wondering what treatment options are most successful....I dont know much about this disorder and I would love to take as much pressure off my fiance as possible. Thanks for all the help you all can give me.

ben

ps. I have posted this at other sites because I am looking for all the advice I can get, I hope this is not a problem.

IP: 64.240.189.84

GRM4LOVE
Moderator
posted 01-24-2003 03:48 PM     Click Here to See the Profile for GRM4LOVE     Edit/Delete Message
Hello Mike and welcome

Congratulations on your engagement...the first thing I would encourage you is to always keep your heart open and acknowledge any discomfort or issues around it to both your fiance and Mike. If you share these feelings and concerns in a loving fashion, both will also guide and help you to move into the situation with more understanding and control.

I have known other members to be caring for a loved one with epilepsy, however, this site is primarily for direct caregiving issues, not so much the disease issue... I encourage you to search the following out on google or any other major search engine

Epilepsy foundation at www.efa.org

Epilepsy Action from the UK www.epilepsy.org.uk

The American Epilepsy Society www.aesnet.org deals with more research and information for professionals that might interest you

www.epilepsy.com

National Instituteof Neurological Disorders and Stroke (NINDS
www.ninds.nih.gov/health_and_medical/ disorders/epilepsy.htm

I believe this next link is in Austrailia but you never know...the globe has become much smaller
www.eqi.org.au

Epilepsy Education Association, Inc.
www.iupui.edu/~epilepsy/

I believe these will get you to where you may find the information you are searching for.

Keep us posted.. all good wishes
gail

IP: 66.108.75.139

GRM4LOVE
Moderator
posted 01-25-2003 05:47 AM     Click Here to See the Profile for GRM4LOVE     Edit/Delete Message
Hi Banking Ben

I just got this in a newsletter and you might find it interesting... you might also want to check more into it...

New Epilepsy Drug For Kids
Children with epilepsy have a new option available to control seizures. The Food and Drug Administration has approved the drug Lamictal to prevent partial seizures in children aged 2 to 16 -- a group that hasn't been very well helped by older seizure drugs that work better in adults, The Associated Press reports.

Lamictal can be used with other treatments to reduce the frequency of seizures. In a study involving 199 children, Lamictal cut the number of seizures in half for 42 percent of the kids taking it, with few side effects. The children also had more days without having a seizure than children taking a placebo.

gail

IP: 66.108.75.139

PrairieGal
unregistered
posted 01-26-2003 08:47 AM           Edit/Delete Message
Hi ben...and welcome...

Congrats on your upcoming marriage...your future wife and stepson are sure lucky to have you...the love you have for them is evident in your taking the time to find out all you can...
Afraid I can't help you much in advice for epilepsy...your best bet would be to research the links Gail left for you...and to see if there is an epilepsy support group in your area...you are always one step ahead of the game armed with as much knowledge as you can find...
I wish you well...please let us know how you are your new family are doing...
take care...
PrairieGal

IP: 24.66.94.142

banking_ben
Member
posted 01-27-2003 03:43 PM     Click Here to See the Profile for banking_ben     Edit/Delete Message
Thank you all for your help. The links look like they will be very helpful. I hope you all do not mind if I continue to come to you all for advice in the future.

ben

IP: 64.240.189.84

GRM4LOVE
Moderator
posted 01-28-2003 08:10 PM     Click Here to See the Profile for GRM4LOVE     Edit/Delete Message
Ben, this is why we are here...to help...please keep us posted.. warmest wishes
Gail

IP: 66.108.75.139

GRM4LOVE
Moderator
posted 02-04-2003 02:15 PM     Click Here to See the Profile for GRM4LOVE     Edit/Delete Message
Ben, you might want to check this info out in another message board posting

http://www.care-givers.com/ubb/Forum5/HTML/000034.html

Gail

IP: 66.108.75.139

All times are ET (US)

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